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publicado em 03/10/2013 às 10h30:00
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Research addresses the maternal role in child hemodialysis

The results showed that mothers may have more positive role in the treatment is supported psychosocial

 
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Foto: Liga Contra o Câncer/LCC
Aim of the study is to create a baseline for future projects in the guidance of medical support to mothers
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Aim of the study is to create a baseline for future projects in the guidance of medical support to mothers

A study conducted at the School of Nursing (EE) USP addressed the role of mothers in hemodialysis children. The results showed that mothers may have more positive role in psychosocial treatment is supported by health professionals.

The dissertation of occupational therapist Fernanda Mieto sought to evaluate what meaning the maternal figure gives the experience of hemodialysis suffered by the child. Studies conducted earlier in Germany already point to a lower quality of life for families with patients who do hemodialysis, when compared to a treatment with medication and transplant process. According to the researcher, the idea would be to bring these observations of conflicts and problems in the family for the maternal universe. Many studies investigating the experience of children and adolescents with chronic renal failure, but none came directly from the experience of treatment, especially focusing on mothers.

Chronic renal failure is an injury to the kidneys, which show a progressive loss of their duties. In conservative treatment, are used only medication and a strict diet. When the patient has less than 10% of renal function uses dialytic treatments such as hemodialysis, and one also seeks transplantation. In the case of hemodialysis, the person is treated in a hospital three to five times a week for a period of 4 hours.

The research was based on grounded theory. Initially mothers responded to an open question about the experience of accompanying his son on hemodialysis. From the responses, we approached other points and other questions we developed to complement the story.

In all, 11 women participated in the project, with the first seven selected only by the criterion that the child performed hemodialysis. Among the other mothers, two had experienced the onset of treatment and two other children were on the waiting transplant. The function of the latter two groups was to allow the observation of the initial impact of treatment and the possible change in outlook since being queued transplantation.

Fernanda says that the first group of women said seeing the hemodialysis machine an object of extreme threat, which could lead the child to death. The fear of the machine is such that many of them deny the need for treatment. This point can also be observed even in the second group, with the initial impact, he says.

The project also noted the degree of dependence created by the hemodialysis machine in both children and adolescents, as in mothers, and evaluated the influence of transplantation to change that perspective. Fernanda mentions that the lives of mothers was also strongly bonded to the machine, and they were recurring reports that transplant surgery might allow the freedom of their lives. Many mothers relinquish the work, fail to seek pleasure and end up creating a social isolation. This leaves the child more vulnerable to emotional disorders.

Professional attitudes

The researcher points out that the purpose of the study is to create a baseline for future projects in the direction of medical support to mothers. The idea is to always keep a listener channel for mothers. The health professional should seek to understand the scale of suffering that may assist the patient's companion.

She says that, according to the census dialysis, currently in São Paulo there are 2,010 patients 1-12 years and 577 patients aged 13 to 18 who are on dialysis. Due to the high number, Fernanda emphasizes that social interaction is only possible to establish a new meaning and get a new mothers' behavior towards treatment. Many drop out of treatment due to lack of guidance more assertive, that could only be drawn from this understanding as they face this experience.

Source: USP
   Palavras-chave:   Maternal role in child hemodialysis    Hemodialysis child    Hemodialysis    USP    Fernanda Mieto    Health   
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