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publicado em 02/06/2013 às 23h14:00
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ABN Launches National Awareness Campaign II of Pompe disease

This year, the actress Sophie Charlotte is the godmother of the campaign, which also brings the dancer Mineirinho Maceio

 
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Foto: Divulgação/ABN
Foto: Divulgação/ABN
The actress Sophie Charlotte, godmother of the National Campaign for Awareness of Pompe disease, 2013 The actress Sophie Charlotte alongside Adriano de Maceio, the two are the face of the National Campaign for Awareness of Pompe disease, 2013
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The actress Sophie Charlotte, godmother of the National Campaign for Awareness of Pompe disease, 2013
The actress Sophie Charlotte alongside Adriano de Maceio, the two are the face of the National Campaign for Awareness of Pompe disease, 2013

The actress Sophie Charlotte is the godmother of the National Campaign for Awareness of Pompe disease, 2013, held in June by the Brazilian Academy of Neurology (ABN).

The campaign brings, alongside Sophie, actor and dancer Mineirinho Maceió that for the second consecutive year supporting the cause. Adriano will make two presentations of dance involving loose goers park Aclimação in São Paulo and also at Copacabana beach, in front of the Copacabana Palace Hotel. The events will be held, respectively, in the day 23:30 June, both at 11pm.

Brazil is the only country in the world to have a day dedicated to enlighten society about the disease. The National Day of Awareness on Pompe disease, established in 2012, is celebrated on June 28.

The goal of the campaign is to disseminate information on Pompe disease to the medical and alert them regarding various medical illness that can present within each specialty. Also, alert the population about the experts involved in diagnosis and treatment.

Know the disease

The Pompe disease is a rare genetic disorder of neuromuscular metabolic nature, progressively affects the respiratory and locomotion capabilities. Walking, running, climbing stairs and even simple movements, such as raising the arms above the shoulders, they become difficult or even impossible. Its main feature is muscle weakness, another important sign is difficulty breathing, which may be the first clinical manifestation in some patients. The Pompe disease resembles other neuromuscular diseases, which makes diagnosis difficult. Symptoms may occur in infants, children or adults.

Brazil is the only country in the world to have a day dedicated to enlighten society about the disease. The National Day of Awareness of Pompe disease, established in 2012, is celebrated on June 28.

Currently, there are 74 people diagnosed with the disease in Brazil, but it is estimated that there are large number of patients without the correct diagnosis and treatment.

Source: Isaude.net
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